5 year old Talia Williamss suffers from Epidermolysis Bullosa Simplex – a rare condition that causes her skin to fall away at the slightest knock – leaving her with huge sores. Poor thing! Check the details and pics of the disease after the jump..
(DM) – A five-year-old girl has to be handled with extreme care – as she suffers from a rare and painful condition that causes her skin to blister and peel away.
Talia Williams suffers from Epidermolysis Bullosa Simplex – a rare condition that causes her skin to fall away at the slightest knock – leaving her with huge sores.
She has to wear water-resistant gardening gloves and has cotton wool wrapped around her knees for protection.
The five-year-old is forced to cover the delicate skin on her hands with padded riding gloves – as well as wearing cotton wool pads around her knees to keep her skin in place.
Desperate mum Sian, from Swansea, South Wales, has even sewn shoulder pads into the inside of her daughter’s school uniform in a bid to save her from the horrendous wounds that could result from a simple playground bump.
Sian, 33, said: ‘If Talia has even a small knock or bump in the playground, it would take layers of skin off and leave her with terrible wounds that blister.
‘If she rubs or scratches herself, she pulls off several layers of skin – and if she gets sweaty, she develops these horrible sore blisters.
‘They call children with the condition butterfly children – because their skin is as delicate as a butterfly’s wing.
‘When she started school in September, she had a little bump at playtime – and her injuries were horrendous.
‘Almost the whole of her palms were open wounds – she had blisters that were as big as her hand. She was in so much pain and as a mum, it was just awful to watch.’
Talia was born with EB, a genetic condition which stops the top layer of skin from forming correctly, leading to painful blisters.